Hey everyone👋🏼 this is me. I’m posting this photo on this page because I love the happiness that my animals bring to me❤️. I’ve been diagnosed with a few things: hEDS, gastroparesis, SIBO, and possibly some other IBD/IBS issues (still TBD). I love having this page to separate my illness life from my animal life. My animals and family bring me so much joy that unfortunately my illnesses have taken from me. Having EDS means my joints are very flexible, this being one of the many things I can do, thankfully I don’t have a severe version. But along with EDS comes many gastro issues, hints the current IBD issues. #ibd#ibs#ibdawareness#ibsawareness#sibo#eds#heds#hypermobility#gastroparesis#chronicillness#invisibleillness
Sometimes our feeds become highlight reels. We don’t ever really see the shadows in someone’s life and we just get stuck in a comparison loop where we get jealous of these seemingly perfect lives. ⠀
Well I want my shadows to be put in the open when it comes to my followers. Because I love connecting with people who have fought hard to get to where they are in their businesses and their lives. ⠀
For those who are new to following me, I was diagnosed with Crohn’s disease three years ago and IBS one year ago. I have been on a roller coaster ride. I now receive regular infusions of a biologic drug every eight weeks at the hospital. On these days, I become incredibly tired afterwards and just want to sleep.⠀
Running my own business means choosing my hours, resting to let my creativity flourish and doing something I love that makes my body and soul grounded and happy. ⠀
At times, there are very difficult days- working around my health, dealing with difficult clients, working out how much to charge, realising I charged way too little for the amount of effort I’ve put in to a job, wondering if I’m ever going to be able to afford to move out from my parents’ house (even though I do love it Mum!) ⠀
While I’m so incredibly proud of how much I’ve managed to do in the first six months of my business, I don’t want people to feel bad about themselves when they see my success. ⠀
We all have our own paths in life. I know that I need to be patient and trust in what the universe has in store for me. And I need to not rush to build my empire. My body would not cope with that. I’m just taking my time, enjoying this period of my life where I’m figuring out what I want my business to look like, doing everything I can to look after my body and really enjoying being close to my parents again after nine years away. ⠀
That was all a long winded way to say please don’t put yourself down when you see another person’s success. We don’t know what goes on behind closed doors. Let’s root for each other but focus on our own lanes. ⠀
After today’s infusion, I’m off for a lovely restful weekend away at the coast. Back into some really exciting projects next week. Love to you all.
Finishing up this cardio program this week and I’m excited to go back to something I love! I don’t love every program that comes out but I do them all so I can tell you about them and know what it’s like when someone asks me to recommend a program for them. I MISS lifting weights so I’m going back to 30 min workouts next week that are mostly lifting with just enough cardio/HIIT intervals to burn fat 🔥 and keep that ❤️ healthy. Starting a new program is always motivating! I’ll take some women with me and coach you along the way if you’re looking for something. Best way is Email link in my Bio or DM 📲
Public vs private life with my ostomy. I posted the first pic on my personal account today. They know I got two surgeries, but they don’t see the less Instagram friendly side. Same pajamas three days straight. Permanent stain on my bag cover from so many leaks. Currently need to sit on a butt pillow at all times. Sleeping with a towel under me just in case. Backpack with me at all times because I can’t bend over to get things off the ground. A literal mountain of laundry my boyfriend washes for me, but I don’t have the energy to put away. Chronic illness is anything but glamorous, but we do need to savor the small moments like a surprise snow day. I hope my future has more of the small moments and less of the in between.
Weekend Nails For Ms Jillian H .🌹💅
Weeping Willow Gel by #ibd
0 52 hours ago
I'm SORRY. And I really am sorry (vs. sorry-not-sorry). Earlier today, someone commented on a post and said, "I know it probably a marketing thing to get us to click through, but I'd really like the graphics you make not to cut off at the bottom...I'd like to see the entire thing.Thanks for listening."⠀
I'm LISTENING. I ALWAYS listen. First, it's actually **not** a marketing thing for me. It's a time thing. I debated and thought, "Maybe I shouldn't even post this graphic tonight because it's "cut off." You're only getting 20 of the 28 ways to reduce stress. But then I thought, "Nah. 20 is better than 0." 🤷♀️⠀
Here's WHY they look like this --> it comes down to time. I produce these graphics for agutsygirl.com. Sometimes I create graphics **just** for Instagram, but many times I don't. So when I want to share the graphic here, it gets cut off. ⠀
In all my spare time 🤣😂🤣😂, I'll start re-creating your faves here to fit perfectly for Instagram. Just make sure to LIKE and COMMENT on those posts to let me know you'd like to see it fit like a glove for the Insta.⠀
Now, enjoy these 20 ways and if you want to. see all 28, click the link in my profile for ---> 28 WAYS TO REDUCE STRESS. 😘⠀
Find hundreds of gut healing posts via agutsygirl.com. (Make sure you're following @agutsygirl +click "Turn on Post Notifications" in the upper right corner so you never miss a post). Grab the 286-page gut healing e-book, THE GUTSY GIRL'S BIBLE: AN APPROACH TO HEALING THE GUT, 3.0 now via link in profile.⠀⠀⠀⠀
50 minutes all over strength training. I really wasn’t feeling this workout. My whole body just felt weak and tired. And I waited way too long to even start it. But! I did it! And I did pretty well. And my abscess is finally behaving like a good little abscess, instead of the lousy troll that it’s been the last few weeks. Night, peeps! I’m so sleepy! 💜😴
4 days left to get a Give Hugs 2019 shirt!! This is one of my favorite styles this year. Link in BIO. This shirt represents the love, support, hope, and FIGHT #chronicillness patients have with an emphasis on #childhoodcancer. A lot of people don’t know it can be hard just to get out of bed and that may not happen for days with chronic illnesses BUT the determination is strong. 💞💓
Phase 4 of my "Moving through the Grief of Chronic Illness model is "Anger, Blame & Guilt." When something bad happens in our lives, it is natural to look for something and someone to blame.
You can feel angry at your situation, angry with your body for doing this to you or blame yourself for somehow creating this disease because if you had only taken better care of yourself or made different choices, you would not be experiencing this now.
Guilt begins to rule your life. You feel guilty about not being good enough: A good enough wife or husband, a good enough parent, a good enough friend, a good enough employee.
You feel guilty because of the additional work or responsibility that your partner or children have to take on. You feel guilty for feeling like a burden.
To get your own FREE copy of my e-book, Moving through the grief of Chronic Illness" click on the link in my bio or type my websites address into your browser.
You can sign up for my mailing list and download your copy now. #chronicillness#hashimotos#rheumatoidarthritis#multiplesclerosis#celiac#crohns#ibd#autoimmunedisease
4 193 hours ago
Whoever said diamonds are a girls best friend, never owned a dog
Thank you to my amazing photographer @capturedbykrissy who sent me this amazing photo. I’ve had a rough day and this was the pick me up I needed.
Sorry for the delay in posting! It’s been a hectic few months for me with school, medical procedures, and my all my other appointments. It’s just how life with chronic illness is sometimes!
Anyway, onto the actual post. Many people don't know the difference between Crohn's and Colitis. A major difference is where the disease occurs. Crohn's mainly occurs in the small intestine but can extend all the way through the entire digestive tract, and in rare cases will also attack the large intestine, while Colitis primarily occurs in the large intestine. Check out the graphic for a visual explanation.
Week One Done! I want to shout from the rooftop... IT’S WORKING!! Cells that had separated and allowed junctions where important proteins are lost in the body, are tightening back up and the levels have come up.
One inflammatory marker is back in the normal range down to 2.7 from 16 and the other is in heading in right direction!
45cm+ of bowel to bring back to health, we can do it!
7 weeks to go and dare I hope to say out loud that Jarrod will be in remission!
13 203 hours ago
1 144 hours ago
Which meal was more popular 🤷♀️ I made both eggplant lasagna & baked spaghetti for supper tonight 😋
Now usually I’m not one to cook two different meals, but it just worked out that way tonight. It took the same amount of time to cook the pasta and prep the eggplant, and then I added the same sauce. A bit of extra cheese on the spaghetti and the results of the pans are pretty clear.
At least I get leftovers 😂
I am so honored to announce that I have officially begun my partnership with Stanford Children’s Hospital Inflammatory Bowel Disease Center!! I will be working with them to create a booklet and website for teens and tweens who are newly diagnosed with IBD. In the future, I may create a product for younger children, but our current focus is on middle and high schoolers. I am so, so excited about this opportunity. My life goals are all centered around taking my experiences as a patient and using them as a guide to help further improve the experiences of other patients. I can’t wait to show you all what we create!
10 84 weeks ago
Because Ulcerative Colitis and Crohn's Disease are chronic diseases, the majority of patients receive treatment throughout their lives. Some patients are able to stabilize their disease using just one treatment level, some use multiple at once, and some require experimentation.
Personally, I started out on steroids, but they didn't work for me. We then switched to a combination of two treatment levels - biologics (an infusion every 7 weeks) and immunosuppressants (a pill taken nightly). This is the combo that we have found works for me.
Everyone's bodies are different and what works for me may not work for you. Listen to your body and to your doctor. You know yourself best and your doctor knows your options best. You and your doctor must work as a team to figure out what works best.
1 81 month ago
What is Inflammatory Bowel Disease? IBD is a classification for two autoimmune disorders of the gastrointestinal tract.
As we journey our way into finding Iris’ true health capability, I find it important to teach her about Mind, Body and Soul. That all of these elements have to be aligned in order to truly be healthy and rid dis-ease
Today I took Iris down to the beach, after filling our belly’s with morning yum yums, and we felt the sun on our skin. We got comfortable and Iris conquered a 15 minute meditation with no problem. When I told her to open her eyes, they filled with tears. I simply smiled and said awesome practice. As time goes on I may or may not ask her what comes to her during these meditations. It is such a sacred practice. I want to give her the space to learn and grow, without imposing on her personal experience.
I am hoping that finding peace within herself, will give her the bad ass strength to heal herself. In due time I know she will be able to do this! For now we push every day for stronger days ahead